Establishing a national primary aldosteronism registry to enable comprehensive data collection

Project description

Clinical registries play an important role in measuring healthcare delivery, supporting quality improvement and evaluating clinical outcomes, particularly in the long term. There are no formal primary aldosteronism (PA) registries in Australia. This is in contrast to other countries which lead the research in PA, including China (CONPASS PA Study Group), Japan (JPAS), Taiwan (TAIPAI) and Germany (German Conn’s Registry). We will upgrade an existing hospital specific registry and expand it to a multicentre registry to systematically collect comorbidities, diagnostic parameters and long-term outcomes of patients with PA. The database will capture the long-term health and economic impact of PA screening and management strategies, and set the standard for future guidelines and policies.